Pathological Demand Avoidance PDA/EDA

Assessments and Guidelines

→ AET Standards, Guidelines for Good Practise  PDA 

→ Extreme demand avoidance questionnaire An informal assessment to identify possible Extreme Demand Avoidance EDA also known as PDA. 

→ PDA Profiler 

→ The Coventry Grid Interview to include the Pathological Demand Avoidant profile  

PDA Information 

→ 10 things you need to know about PDA.  Source Steph's Two Girls 

→ Autism with PDA 

→ Encouraging the Positive in PDA   Introduction to PDA, strategies, and links to additional support.  

→ Fintan O Regan on PDA. Slides "No two children are the same" 
www.fintanoregan.com 

→ Differences Between ODD and PDA 

→ Is PDA real? Source Steph's Two Girls 

→ PDA v's ODD - A Mum's Story 

→ The Family of Pervasive Developmental Disorders 

→ What Challenges are Faced by Siblings of Those with PDA and How to Support Them. 

→ What is PDA?  By Social Thinking 

→ What is PDA? By the PDA Society 

→ What is PDA - Booklet  By PDA Society 

Strategies 

→ Encouraging the Positive in PDA 

→ Helpful Approaches for Parents & Carers By the PDA Society

→ How to Manage PDA - A Mum's Story 

→ Managing PDA in Class Twinkl 

→ PANDA Strategies Infographic 

→ PDA for Teaching Professionals By the PDA Society 

→ PDA - Keys to Care   By the PDA Society 

→ PDA - Mind Map 

→ PDA - Strategies for School 

→ Positive PDA By Positive PDA 

→ Strategies for PDA  Source Steph's Two Girls 

Resources 

→ EHCP and PDA 

→ PDA Awareness Card 

→ Parents' Request for Reasonable Adjustments in School. Template 

→ Sources for Further Understanding 

→ Student's Profile. Sample

Media Links

→ PDA and Sensory Processing Disorder with Alison Hart 

→ An Introduction to Pathological Demand Avoidance  

→ Demand Avoidance of the PDA kind The PDA Society

→ PDA Society simple support strategies for a PDA profile of autism 

→ PDA Webinar Education and support needs of children with PDA with Phil Christie and Ruth Fidler 

→ Understanding PDA webinar Part One 

→ Understanding PDA webinar Part Two

→  PDA and Sensory Processing Disorder with Alison Hart 

→ PDA & masking with James 

→ Coverage of PDA on BBC Look North 19th Dec 2018 

→ PDA and Speech & Language Therapy with Libby Hill 

→ PDA best practice - what the PDA community would like professionals to know 

→ PDA best practice - what the professionals would like you to know 

→ PDA best practice - what the education professionals would like you to know 

→ PDA and Mental Health with Dr Judy Eaton 

→ STLS Introduction to PDA 

→ Let’s not talk about school ‘refusal’; let’s talk about barriers to attendance with Fran Morgan

Recommended Reading A - Z

Most of the books you see below are in the STLS Library. Please contact emma.holt@stls.nexusschool.org.uk, if you wish to borrow them. 

→ A Volcano in My Tummy: Helping Children to Handle Anger: A Resource Book for Parents, Caregivers and Teachers 

→ Being Julia - A Personal Account of Living with Pathological Demand Avoidance 

→ Can I tell you about Pathological Demand Avoidance syndrome?: A guide for friends, family, and professionals 

→ Can You See Me? 

→ Collaborative Approaches to Learning for Pupils with PDA: Strategies for Education Professionals 

→ Do You Know Me? 

→ It's a PanDA Thing 

→ Life on an Alien Planet: Pathological Demand Avoidance: A PDA boy and his journey through the education system. 

→ Me and My PDA: A Guide to Pathological Demand Avoidance for Young People 

→ PDA by PDAers: From Anxiety to Avoidance and Masking to Meltdowns 

→ Pathological Demand Avoidance Explained 

→ Pathological Demand Avoidance Syndrome - My Daughter is Not Naughty 

→ Sensory Circuits: A Sensory-Motor Skills Programme for Children 

→ Super Shamlal 

→ Understanding Pathological Demand Avoidance Syndrome in Children 

→ The Adventures of Pickle 

→ The Family Experience of PDA: An Illustrated Guide to Pathological Demand Avoidance 

→ The Explosive Child: A New Approach for Understanding and Parenting Easily Frustrated, Chronically Inflexible Children 

→ The Panicosaurus 

→ The PDA Paradox. The Highs and Lows of My Life on a Little-Known Part of the Autism Spectrum

Signposting

Below is a List of Various Organisations that Provide Support, Advice and Resources.
If any of the details below require updating or amending, let us know

Please be aware that the organisations listed on this page are provided for information purposes only, and are not endorsed or recommended by STLS. You should always ensure that any service, activity, or therapy that you are considering for your child / young person is appropriate to their needs.

→ National Autistic Society Offers Support and Guidance on PDA. 

→ Steph's Two Girls. A website born out of the personal experience of being a mum of children with PDA. It is full of information and recommended resources. 

→ The PDA Society provide information, support and training for those living and working with PDA and work to raise awareness, increase acceptance and empower people to take action in relation to PDA. 

→ Elective home education - helpful approaches & resources for PDA This resource consists of helpful approaches and resources to support parents who are home-educating PDA children and young people 

→ Support for Siblings
The PDA Society offer advice and support for siblings of those with PDA.